Teddy. Edward Constantine Wright. Born on Monday 16th May 2016 at 6.45pm weighing just 6lb 2oz. He was full term (well 4 days short of his due date). I was induced following leaking waters and reduced movements, and was in active labour for six hours after they broke my front waters. Gas and air got me through (and lots of yoga breathing, posing and trying to reassure myself “You’ve got this”). I must have guzzled down about two litres of Lucozade energy and eaten my body weight in jelly babies during that time in an attempt to “Keep my energy up!”
When he finally arrived into the world I got to tell my husband “It’s a boy!” as they handed him to me. Just to explain, I was on all fours on the floor (crash mat provided, thank you NHS) and my husband was sitting the other side of the hospital bed, so he couldn’t really see what on earth was going on . Teddy was passed around to me and I got to make the important “pink or blue” announcement. I felt like I deserved the glory at the end of that hard slog to be fair.
I won’t lie; it’s hard to tell a positive birth story when your baby never comes home with you; but I always give it my best shot as the moment he was born was, and will remain, beautiful to me. It’s what I cling to in my darkest moments. He lived, he was here, I held him. Sometimes I feel as though I just play it on repeat in my head to make myself believe he was real. I know he was; I have a birth (and death) certificate that says so; along with a memory box and a handful of cherished photographs. What I am saying is, when a childs entrance and exit from this world is all but a fleeting moment; a still birth, a few hours, or a few days in Teddy’s case; your mind often starts to blur lines and forget details as time passes. I feel as though I have to speak his name daily, look at his photos and sit in his nursery; just so I feel him.
Teddy was poorly; he was never going to live. Something we never knew until he was here and it was too late for him. He stopped breathing in the small hours of the morning after the evening he was born; he was revived; and was taken to a specialist NICU unit the following morning where he spent the next three days being cared for as they ran every conceivable test possible on his tiny being. I am so grateful for those three days, for so many reasons. Even though Teddy was in a tank, on a cooler mat with multiple wires and monitors on him; he was still here. He was still alive for me to touch, talk to, read to, brush my lips against his little soft shoulders and the back of his neck, to breathe him in and remember his scent. He still met his grandparents who all spoke to him. As we leant over that tank and spoke to him; I know that we both poured every ounce of our positivity into him; every hope and dream we ever had for him. I used up every wish, every prayer, that this lifetime has given me in the hope he would just wake up; wake up and come home with us.
When we found out there was nothing they could do for Teddy and that he would die that day, I don’t think I could ever describe how that felt. Believe me I have tried to many times over the past months; but it’s a truly inexplicable feeling, one I wouldn’t wish upon anyone. All I can say is this; I felt as though every last breath had been kicked out of my chest, as if a wave had pulled me under and no matter how hard I kicked, screamed or struggled that I was never coming up for air. The feeling engulfed me. Now that this had happened, I knew it was totally irreversible; that our lives, no matter how hard we tried or how much time passed, would never be the same.
In that afternoon, the hours that led up to our final goodbye with Teddy felt as though they moved in slow motion. We finally got to cuddle him again, skin on skin, out of his tank. His grandparents held him close for the first time. We took our only photos as a family of three. We washed him, changed him and dressed him in a romper suit and hat (he had been in just a nappy for days). I finally felt like a proper Mummy, looking after him. They brought Teddy to us in his tank, to our room. It was more like a bedroom than a hospital room; I didn’t want him just being “switched off” in a room full of other babies and their familes, no matter how private they made it, it didn’t feel right. Instead he was brought to us in a room with our family; I sat on a sofa flanked by my husband and my mum. As his nurse stopped pumping air into his lungs she removed the final pieces of tape from around his mouth and handed him to us. Finally he was free from all those wires, all that beeping and buzzing; no more machines, just my perfect boy. As he took his last gasping breaths we read him a story; “Guess How Much I Love You?”. It was a loaned booked from his cousin and I had read it to him in his tank the previous evening in the hope it might make him better. I had never read that book before; and I haven’t read it since; but those words will stay in my mind forever. I was lost in them as I tried to photographically memorise every last detail of his perfect little face, and the weight of him in my arms. Then those tiny breaths stopped. At 8.31pm on Thursday 19th May 2016 Teddy left us, not in any more pain, for his big party in the sky.
As we tucked him back into the hospital cot, we kissed him, stroked his little face and I breathed in that scent for the last time. I felt as though I was tucking him in, kissing him goodnight, but for the first and very last time all at once. As they wheeled him away I caught one last glimpse of him and his toy elephant next to him, and I knew that would be the final time I laid eyes on him. He looked so perfect, so peaceful. I wanted this as my lasting memory; so we chose not to visit him at the funeral directors after that.
We found out some months later that Teddy’s condition was a very rare metabolic disorder; one that stopped him from processing acids in his body; it made him, as the doctors worded it, “non life compatible”. His little body simply shut down. I am so grateful that we were all in such great care and that thankfully the dedicated team of paediatricians were able to find the cause of Teddy’s death. I often wonder how it would have felt never to have found out what happened? What we do know is that Teddy’s condition wasn’t hereditary; neither of us carry a gene that could have caused it; it was, as they say, “one of those things”. I am still unsure how my mind has processed the possibility that this could have happened to us by “chance”. That for some unknown reason we had to be bestowed the cruel twist of fate in life that is losing your child. Knowing and understanding what happened is easy enough; with thanks to medical science. However, for your head and heart to truly comprehend why this had to happen, is an answer I fear will escape me for a lifetime.
All I do know is this; when Teddy first died, in those first moments, days, weeks; I felt as though we were the only ones; complete alone in our loss. The only people unlucky enough to have met and lost their child in one all but too brief a moment. Sadly, I was so wrong. When you scratch the surface of the world of lost babies; your eyes are truly opened to a life, a loving community, that you never knew existed. A collection of mothers who have so much love in their hearts for their lost little ones that their love begins to flow over into the lives of others, to reach out to them and let them know they’ll be ok; that they will survive this. It is in this moment that I can only say a heartfelt thank you to all of those courageous mamas, who just like me had felt alone at one moment in time too. Thank you for reaching out, for connecting with me through Instagram (see social media isn’t all bad!), for sharing stories and photos of your beautiful babies, for offering words of advice, and a place to vent. Most importantly for making me feel than I am not, and will never be, alone.
Elle x
What an incredibly beautiful piece Elle. I follow you on Instagram and I marvel at your incredible bravery and tenacity! Thank you for sharing what must have been the most difficult story to tell. Teddy is blessed beyond measure to have you as his mother. Clare xxx
So brave of you to share Teddy’s story. Words completely fail me as everything I think of saying sounds so futile, I admire you so much for being so strong, writing this blog must have been so painful for you. I truly hope you’ll become parents for a second time in the very near future. Wishing you all the luck and love in the world.
Pia xxx
This is so beautifully written. I’m so sorry you and your family went through this. Teddy was and always will be loved by you all. He made a difference in his 3 days. Sending you love. Sami xxxx
Teddy is a lovely little boy and lucky to have such loving family. I’m so sorry for your loss, I found you on Instagram in the days after my daughter was stillborn and I was feeling so alone too. It is eye opening and heart breaking to realize how many baby loss mamas there are. Keep shining bright, your posts bring me joy and I know Teddy is so proud of his mama 💕✨
Thank you Lauren. You are right, once you look for it there are too many of us! Sending love and light to you! Xxx
You’re so very brave to share this, and written so beautifully. I enjoy following you on Instagram and seeing all the things you do and make, it’s a hugely positive way to deal with such a heartbreaking time for you.
xxx
Such a beautifully written blog. A heartbreaking read but your bravery shines through. Thank you for sharing x
Elle, so beautifully written, I wish I could do more to help heal your pain. So much admiration for you both, and I know that your bravery will continue to support many who need it. Thank you for all you do, and who you are. Much love xxx
I’m sure anyone reading this will be as moved as I have been by your story. You should be proud. The dignity you show in writing this is truly admirable. I hope it is of some comfort that you are not alone. I would encourage you to continue writing and sharing your experience so that others may be able to find support in these times.
Our thoughts are with you and we wish you all the very very best. Thank you for sharing this
Thank you so much for your lovely words Mike. X
Beautiful piece of writing Elle
I just can’t do this post enough justice, but I’ll give it a go… As a medical student, this reminded me of the amazing strength each and every one of the patients I meet every day has. But you have something extra, you have the bravery to talk about your pain in the warmest and most beautiful way. To use your grief to write something which is so moving, yet still shines through as wonderfully positive is a testament to the kind person you must be. And what a beautiful little boy you got to welcome into this world 🐻🌟 Wishing you all sorts of happiness for the future x
Thank you so much, for sharing your deepest thoughts with us, & your precious memories & photographs-I only just notice today how Teddy shares your beautiful heart shaped face!
You’re amazing Elle xxxxxxxxx
Hi Elle I’ve just read your blog so moving! Your so brave to share this story I admire your strength and positivity your doing so well 😘 Xx
Thank you lovely. I cannot thank you enough for taking the time to read this. Xx
What a truly beautiful piece that bought a tear to my eye. xx
I’m in tears. You have such incredible strength to tell your story, and in doing so helping others come to terms with their own losses. X
In the early days I didn’t want to go on, I couldn’t imagine my life continuing. I have a memory box I still find too painful to open 10 years on, but reading this made me realise that I need to, no matter how painful, I owe it to her. Thank you xx
Sophie Lauren 28.12.2006
Thank you for sharing Tracy. Sending love to you and to your beautiful Sophie Lauren xxx
Oh, brave warrior mama. Thank you so much for sharing your sweet Teddy with us.
We are just going through the beginning days of loss. We lost our Ivy on January 22nd.
Stay strong mama. Ivy will always live in you, that’s how we keep them alive! Xxx
God bless you and all your loved ones… and that you find strength knowing that your little angel is watching you and one day you will be together again xx
Elle, I had no idea you went through such a awful, awful thing. Your writing is inspiring and your posts are beautiful xx
Thank you so much for reading Tiffany and for your lovely words xx
You are so so brave. Sending you hugs. Your words brought tears to my eyes, I can only begin to imagine what you have been through.
Sending you positive and healing thoughts.
Xxx
You tell yours and Teddy’s story beautifully. I am so sorry he didn’t get to stay with you, but one thing is for sure. you gave him a lifetimes love in those few days.
I lost my first Son, Daniel when I went into premature labour at 23 weeks and he would be 25 this year. I have gone on to have 3 wonderful children and they know all about they’re Big Brother and how important he was.
When it’s time, you’re Rainbow Baby will come along and you will be able to tell them all about their Precious Brother.
Big love Xxx
Thank you for sharing Daniel with me. I’m so happy to hear that you have always been able to talk about him and honour his memory. Hearing that you have three other children makes me feel very hopeful indeed. Sending love xx
Thank you for being strong enough to share this story. I’m sure there are lots of Mothers and fathers out there that have needed to read this. Beautiful words. X
Thank you for your lovely words Rachel, and thank you for reading xx
I am crying for you. I am at a loss as to how you are so strong and amazing after your beautiful boy was taken from your like that. I cannot even imagine what those days were like for you, sending hugs x
Thank you for making me stop in the midst of just another hectic day to realise the delicate beauty of life.
x
I have been following your interior blog, which I love and I must admit I have slight house envy. However, today I felt I should read your other blogs, especially your one about Teddy. It reduced me to tears for two reasons. The first is your openness about Teddy. Your love and happiness shines through out it and your beautiful photos of Teddy and the three of you tell a thousand words. The second is because I too have lost a little one, my second child,who was also called Teddy. I unfortunately lost him at 21 weeks. I had to go through labour and birth and I know that raw pain of walking out of hospital empty handed, but because he didn’t reach a certain period within my pregnancy he couldn’t be officially recorded. I only know that he existed because I have my scan photos, hand & footprints and photos of him. My Teddy was also a very sick little boy. Had he lived he would have been very disabled and would have required 24 hour care. If he had survived he would have only lived until the age of 14 at best. I truly dont know if i would have able to cope. This was 10 years ago and although the pain has eased over time, it’s still there. However, teddy looked down on me and sent me my beautiful daughter Grace exactly a year after Teddy was born. She was meant to be and although I had my first son Joshua to hold during my grieving period, Grace healed my broken heart. Thank you for sharing your story so openly and I hope in some way my story helps to show that there can bright in your life eventually. Julia x
Words fail me as nothing I can say can convey how reading this made me feel. I am sobbing my heart out but full of so much admiration for your bravery. You have made me realise how precious and delicate life is. X
I feel absolutely heartbroken after reading this entry in particular. I can’t imagine how you felt or how you manage to carry on each day with such positivity and bravery. Life is just so unfair sometimes and doesn’t seem to make any sense when awful things happen. You are an inspirational, awesome person and you have made me realise that I need to appreciate what I have and how lucky I am. You seem like you have a lovely hubby and family and some amazing inner strength, so keep doing what you’re doing and hopefully the pain will ease a little with time. Lots of love and hugs. Xx
Teddy is gorgeous and so precious! I’m so sorry that life had a different plan for him than the one you had. Sending you much love xx
Hello Elle, I started following you on Instagram very recently. My daughter was fatally diagnosed in August 2017 with a condition which made her ‘incompatible with life’. She was born on November 27th 2017 at 10am and passed away half an hour later. We only got a few minutes with her but I will never forget the precious brief moments we had. Thank you for sharing your story… I love writing and someday I hope I have the courage to publicly share my daughter’s story, in the hope of creating awareness and showing others they are not alone. Take care Elle xxx. If you want to follow me on Instagram, I’m alliemint
This morning I read your BBC interview and I want to say thank you! I have found it really hard having an alternative motherhood and not being “part of the club”. Your article says everything my partner and I have been feeling for the last 6 months: that society is not cut out to deal with the death of babies.
Although our son died, all I really wanted people to say was congratulations on having a beautiful baby, but instead the subject was mostly avoided (though my closest friends have been amazing).
So I want to say to you, congratulations for having Teddy, he’s beautiful and thank you for putting it into words x
I have just read your book in two sittings, what an inspiring book and one that has changed the way I will in the future talk about babies, birth, pregnancy and loss. All to often people just don’t know how to talk and your inspiring story has made that possible I hope as many people read your book as possible so this isn’t such a taboo subject. The way in which you wrote was truly honest and I hope that you to get to bring a baby home to join your family of 3. (4 with Boris 🙂 xx
I’ve just discovered this, I cannot imagine the strength it must have taken you to carry on and to write this piece. Such beautiful words, I felt every one of them. I hope your little family grows for you, you deserve every happiness after this heartbreak. I don’t think I’ll ever forget your story, thank you for sharing it and reminding me of the fragility of life and to always appreciate the beauty in tragedy. Xxx