Truth be told, I have wondered for the past two months whether to even write about this one. I don’t want to wallow in poor-old-me status or have people give me their sympathy. When I post anything about our fertility journey since died Teddy, or in fact anything about losing him, it’s never for anything other than trying to connect myself to others who might have been through a similar experience. Whether it be to offer them some comfort, or find some for myself; I am not sure? I think it is most likely a case of simply not wanting to feel like the “only one”. Which I will admit, I often do when I see other people having babies and making it look as easy as shelling-peas (as my Mum would say).
We did IVF, again. Spoiler alert; I am not pregnant. After the complications and miscarriage earlier in the year we had pondered on whether the time would be “right” to try it again. My hormones after our loss had been (to say the least) complicated and had not returned to what were considered “normal levels” until June. We had begun our IVF cycle in January; so half a year had flown past and we were essentially right back where we had started. After a couple of normal monthly cycles we embarked on the now unpredictable (thanks to my body) road of IVF once more. A process of nightly injections, keeping secrets from our loved ones, and cancelling plans at last minute because I couldn’t face it/ didn’t want anyone to ask why I wasn’t drinking or (even worse) assume I was pregnant/ said-plans clashed with injection timings and the logistics were just too tricky to contemplate.
This cycle (which began in August) was a “long protocol” of 6 weeks of treatment. Meaning on day 21 I began injections to shut-down my hormones (essentially tricking my body into a menopause-type-state and preventing ovulation). I was eating the right things, taking the right vitamins and drinking hot ginger and lemon like my life depended on it. Two weeks on and I began second nightly injections of a drug to stimulate my ovaries. After my check up scan and during my first week of stimulation drugs we were off to Cornwall, which felt like the perfect place to escape the pressure and expectation of it all (that I had quite clearly piled on myself).
One week on and I returned for another scan to see how my ovaries were responding. Tick; brilliantly. We were over one hurdle. I returned 48 hours later for another scan. Wait; how can they be responding too well? This wasn’t in the plan. I had been considered a low/slow responder in previous cycles. I had developed just one singular (big) follicle in our first cycle at the end of last year; forcing it to be cancelled a few days before what should have been our egg retrieval. During the cycle at the start of the year they had collected just 10 eggs from me and only 3 had fertilised into embryos. How on earth were my ovaries choosing to do this, now?
With 52 follicles looking like they were growing by the day and a set of ovaries that actually felt fit to burst; I was sent home with a lower medication dosage and with instructions to rest and drink 2-3 litres of water a day. “Well at least it can’t be cancelled this time.” I thought. I had too many if anything? When I returned to the hospital that Friday the news was better; I think there were 10 less follicles of what is deemed “mature” size at that stage; but still, over 40 was pretty huge. I was warned that once they performed egg collection on the Monday that I could become poorly with OHSS (Ovarian Hyperstimulation Syndrome). I was also told that if they collected over 25 eggs that any embryo transfer date would be automatically cancelled as I would be deemed too “high risk” for the OHSS to progress and worsen. Fair enough; it is a serious condition and I wouldn’t want to put my own health, life even, at risk.
After another weekend of rest and water; coupled with a little celebration from me as I administered my trigger shot after 4 weeks of injections, Monday rolled around and we were checked into the hospital by 7am. We settled in, I made the same jokes about the sexy gown and my love of surgical stockings. I was taken to theatre, sedated and the next thing I knew I was chatting to a doctor in the recovery room as I came around, and was practically begging him to tell me that they hadn’t collected more than 25 eggs. He didn’t know; that was news for the embryologists to deliver. They wheeled me back to the room where the familiar scene of my husband waiting with all my favourite snacks and drinks awaited me.
A little differently this time, I was on a drip. The nurse assured me it was just because of my high risk of OHSS and that they needed to keep me hydrated. About half an hour passed before an embryologist came to see us. 28. TWENTY-EIGHT bloody eggs! I should have been over the moon, but I wanted to burst into tears in front of her. Not because it wasn’t wonderful, not because I didn’t see those as twenty-eight wonderful chances of us becoming parents again; but because this marked the end. Seven long weeks into this cycle, and the curtain simply dropped down on us. No transfer, no opportunity of pregnancy; no hope. I cried as soon as she left the room, as my husband stroked my head and reminded me to try and eat and drink. The nurses who kept returning to check on me said that it might not mean no transfer and that I could be monitored, but I knew they were just being kind and optimistic. The rest of the afternoon went by in a blur of sickness and vomiting, fainting to the floor and another drip to hydrate me, before we were allowed to go home later that day.
By the time the evening came and I was (still) lying in bed, I knew I didn’t feel right. I felt like I was running out of room under my ribs; as if my tummy was expanding at a rate of knots and there was nothing I could do to stop it. My ovaries physically ached. All of this felt so far removed from our last IVF cycle. I felt battered and bruised by all of this; not to mention really sick. The following morning wasn’t much better. my appetite had left the building, everything made me nautious (quite cruelly it was reminiscent of everything I had experienced in my first trimester of pregnancy with Teddy). The embryology call came. 23 had fertilised. I was so happy. My tears of despair turned into ones of elation, and in that moment all I could think about was that rugby team (and reserves bench) of babies that were growing in the lab.
As the week went on, it became quite clear that an embryo transfer wouldn’t be happening for us, this time. I was swelling to the size of a small village and could barely move from my bed. Each day we received an update call on our little embryos. Then, once day five had come and gone, every one that they were able to were put on ice, for now. I will be honest, at this point it felt like a relief. No more drugs, no more interference; a chance for my body to recover from this. I knew the last thing I could physically handle at this point was a baby-on-board; the risk to my health was too great.
As the cycle ended the following week and my period finally came after two months of treatment, I felt like I could finally breathe out; literally and metaphorically. I had been desperately holding it together for those last two weeks since egg retrieval. Putting on a “brave face” (again). I finally felt ready to cry. Oh, and did I.
When you put your everything into the hope of an outcome that you both want so badly, and it ends all too abruptly, it’s as if that final bit of hope is taken away from you. Now, two months on, I realise that isn’t the case. I’m starting to look up again. You see, we have fourteen little rays of hope waiting for us; just on ice.
Elle x
Elle, you and Nico are so incredibly brave baring your hearts and your souls.Those 14 little rays of hope are just waiting and biding their time. All will be well. Sending love and hope and prayers 🙏😘 xx
Up until the freezing egg part this is my story too!! OHSS is awful! You described it so well – like there was no room left in your tummy! Unfortunately I didnt have enough good embryos to freeze at this point so my story end differently. For you though, dear Elle – I pray for happiness. Thank you for sharing our story – every cell in my body (even my crappy egg ones) wants this for you – you deserve the happiness this could bring xx
Hope you don’t mind if I say a prayer for you both 🙏🏻 🤞🏻❤️
Oh Elle!!!!! I held my breath reading all of that!! Wow. Hope you’re doing well and have properly recovered – at least in the physical sense – (and also so so pleased to hear that there are 14 rays of sunshine on ice waiting for you 🤞🤞🤞🤞🤞🤞🤞🤞🤞🤞🤞🤞🤞🤞 fourteen sets if crossed fingers for you guys)
Lauren x
Keep going. Stay strong. You will have another baby xxx
How I can relate. Since losing our Jack last year we haven’t had a normal day, week, month. I miscarried in Jan and again just last week. We’ll likely start IVF in two months time but with me hitting the dreadful age of 40 next month I fear my clock has run out. Thank you for your continuous words of encouragement. Keeping everything crossed for you. X
I’m wishing 14 huge wishes that things will work out…lots of love and hope to you and Nico 💕💕xxxx
Elle & Nico – thank you for sharing your story – you are so incredibly strong – and I know there are some days you don’t feel that way – but believe me you are. Hugs to you both & those 14 little rays of sunshine waiting for you chillin’ out. xxx
Oh Elle, I am so hopeful for you both – your baby is waiting for you in their chilly hotel ❄️ We recently put 5 on ice and were elated with that but 14 is just incredible!!! IVF is a funny old rollercoaster 🎢 so many ups and downs just in one cycle. But hopefully 14 means you at least never have to do stims again!! Xxx
I love how you share with us your story and it’s never “poor old me”! Your little rays are ready and waiting! The day we can all read that you are pregnant will be a day of lots of tears of happiness from so many people. Sending love to you and your little rays. Ellie 🧡
I hope things are still positive for you. This must have been incredibly emotional to write. It was emotional to read. You put it all so eloquently. Keep strong and full of hope. Lots of love.
What a warrior. The pair of you (but mostly you). Keep going old girl. What a tremendous thing you’ve done to get this far. That chilly hotel is surrounded by a lot of love from afar, hope you can have a gentle Christmas re-grouping. Xx
You are amazing, so strong. Those 14 are arguing over who’s going to win 😊 sending you lots of luck and positive vibes xx
Gosh, IVF can be a right pain. How bloomin’ awful for you. But, you do have hope, on ice, in the freezer! That’s epic. My story is similar. My daughter, now 14, was a frozen a blastocyst, a reject from the first egg transfer of that cycle. We had many cycles. I carried her in a vacuum flask, still frozen, on the train from Bath to our London clinic. She was defrosted and transferred. We saw her under the microscope, a bulging/moving cluster of cells. After many failed cycles, she made it. I couldn’t believe it. Two years later we tried for a third baby. Our first son, before our daughter had been stillborn. I had more IVF and was finally told there was no point continuing, I was premenopausal, no chance of producing eggs of quality. I was 36. We stopped. Incredibly happy to have our daughter, but still longing, kind of knowing we weren’t ‘done’. Another miracle, a year later our son was conceived, out of the blue, a total surprise. Astonishing. Things like that never happened to me, or so I thought. So… keep going, it’s crap I know. I hated the needles.. Very best of luck to you both x
I think you are so brave for sharing your journey so openly and I honestly do think of you, even though I only see your life through Instagram etc, you are in my thoughts and I hope one day I will be reading some good news for you and your fertility journey. X
So many little ice babies!! I also suffer from ohss but my eggs have never done that well. I have my one miracle baby (surviving twin premature delivery siugr) and we have to start from scratch. Thinking good thoughts for you. FET is so much better than a stim cycle. Xx
So grateful for your stories . So much love and hope to you x
14 ice babies is beyond amazing – well done you!
I know from experience the IVF journey can be such a bitch. Just think, no more retrievals or egg making drugs for a very long time – hopefully never again!
So hoping for a happy outcome for you from this! Good Luck! Xx
You are an inspiration, I hope your courage strength & determination brings you the joy you deserve.
I follow your stories, always awaiting your happy ending ❤️
Praying for a miracle and hope you soon recover and ready to start 2020 with hope and light . God Bless .
I have never wanted someone to have a baby more than you. I really hope there’s good news for you very soon ❤️
You have certainly provided comfort/connection for me. My story is different (aren’t they all) but am about to enter my fourth year of trying to make a baby. I find great comfort in hearing the stories of others still in the middle of the uncertainty of knowing how things will turn out for them. While I am happy for those who share their miracle stories, for me, I find comfort in the seldom heard voices of those still in the eye of the storm. Thank you X
Thank you so much for sharing this. I’m the same age as you, and would love a family but for various reasons I haven’t got there yet. I’m so grateful for you sharing, I think you are so absolutely gorgeous and awesome. I’m so inspired by your amazing toughness in getting back up when I KNOW you didn’t want to. You have inspired me so so much in so many ways and you didn’t even know it. I pray for you all the time, and each time your email pops into my inbox I feel happy (because I get to find out how you are – have kitchen mega envy) and also take a breath in (because I know it might be a tough one). Sending you (and Boris and Nico) the hugest of love xoxoxox
I did a freeze all ivf cycle and am so glad I did as my body had a chance to recover. It also meant I could do pgs testing which made the world of difference as I knew which embryos were normal and this saved me a lot of heartache. I really hope you’re lucky with the first transfer of your new embabies.
I also had 4 day 5 embryos frozen and waited 2 months for my body to recover and for me to feel like me again which was the right decision as the first time they put in a frozen embryo I had my gorgeous Harry and we went back 2 years later to get another one and now I have beautiful Barnaby ! Got everything crossed for you! Look forward to reading a successful outcome in the future! Xxx
Just took a little read of your latest posts Elle. (Actually appreciating isolation giving me more time to ‘blog’ read.) What a journey you’ve been through my goodness. Just sending all the love to you now in this happier journey that I really do want the best for. So thankful for all that you do for the baby loss community and I guess I speak on behalf of so many when I say we feel grateful to have your honesty and journey to help. If ever you get more time to blog please keep it up ♥️, Ashleigh x